tag:blogger.com,1999:blog-3975418330771814963.post3667252975196171789..comments2022-11-09T00:28:25.024-08:00Comments on Super Hero Henry: Back to BaltimoreUnknownnoreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3975418330771814963.post-7382325685165810902021-04-14T04:26:02.848-07:002021-04-14T04:26:02.848-07:00Sounds like you are getting lots of great answers....Sounds like you are getting lots of great answers. Henry is currently doing well. I should probably add an update.<br />Stacyhttps://www.blogger.com/profile/18177262017607403936noreply@blogger.comtag:blogger.com,1999:blog-3975418330771814963.post-32482252561057147762021-04-11T14:52:58.264-07:002021-04-11T14:52:58.264-07:00Hello. I have a 5-year-old son who was born with C...Hello. I have a 5-year-old son who was born with CFD, he has no femur, no fibula, and no stable left hip.<br /><br />Doctor Standard has reviewed his case, he has not said that the surgery must be modified rotational plasty.<br /><br />It has given us hope. Thanks! how is everything going with HenryMinerva https://www.blogger.com/profile/08014906334517807985noreply@blogger.comtag:blogger.com,1999:blog-3975418330771814963.post-79566448319039437642014-12-16T15:09:30.817-08:002014-12-16T15:09:30.817-08:00Hi, I just came across your blog and thought I cou...Hi, I just came across your blog and thought I could be looking at my own son. As with Henry, he has PFFD and is a patient of Dr. Standard. We actually live in the Baltimore area. He had rotationplasty done back in January and is doing well. He will be 4 in January by the way. I haven't had a chance to read your entire blog but it is great. I was just curious where you got his prosthetic. We have had good luck with our son Matthew's prosthetic but because he is growing it needs constant adjustment. There's just not a lot of information out there and most of the prosthetists we go to aren't that familiar with pffd and rotationplasty. Thanks again for the blog.wphttps://www.blogger.com/profile/12839058787508624540noreply@blogger.com